Prologue and current status
|Me and my wolfie.|
In late 2016 I started to lose weight and I felt tired and lethargic. I also noticed a little lump on my right leg close to the hip on the Illiotibial band (IT-band) that grew rapidly.
In January of 2017 I underwent surgery and had a large stringy mass removed. The mass itself had a little fibrous center with small scattered elements of scar tissue and long black string-like growths, making it about 5 to 6 cm (2.3 inches) all stretched out. The experts who study it could not identify the black spiderweb-like strings. The statement from the surgeon and the experts simply said “a cancerous growth with unknown and unidentifiable mass”. That is very weird. Anyway, they thought it was benign and not malignant.
At the time when this mass was removed, I got a new hard lump on my other leg – also along the IT-band near the hip. As I did some prolonged fasting (7-day water/mineral fast) and then followed a ketogenic diet, it didn’t change in size and I started feeling better. During April to June I almost felt like my old self again.
Then in July I started to get cold/flu-like symptoms in the morning that went away after a few hours. I didn’t give it much thought until I noticed that my energy levels began to plummet in the afternoon. In September I began to have trouble focusing on tasks. Writing, for example, has always been fluid for me, but now I had to dictate what to write inside my head and I also had to re-read what I wrote to remember what to write next. My eyesight also started to blur in the afternoon or after longer periods of focusing on something. My thinking slowly started to feel sluggish and later in the day I couldn’t even read or watch a short video clip on YouTube without losing focus and interest.
In October I visited my doctor, got some basic tests done and received a long-term sick-leave. We also started a medical investigation. As I write this, (after 1.5 months) I’m still waiting for a remittance to a medical clinic that has the equipment and competence needed.
As I write this, I still feel somewhat lethargic upon waking at about 5 AM. But after an hour I feel pretty good and this is when I take my longest walk with my dog (1.5 hours). As I return home I have decent mental clarity and my energy levels are ok. I feel like 75 to 80 % of my old self.
However, this state rapidly declines as the hours passes. At about 9 or 10 AM I’m down to about half my usual pace, whether it be writing, reading/studying or doing anything else that need some kind of cognitive ability. At 11 or 12 AM I begin to feel sluggish (can’t focus or think clearly) and a few hours later my senses feel dulled, like moving through fog. My eyesight is reduced and slightly blurred, my motions when moving around feels like they’re lagging behind, like a movie that is out-of-sync. I have a hard time focusing and nothing really catches my interest – and if it does, I can only focus on it for a minute or two. It’s like being totally burnt-out, but then you feel almost normal again for a few hours the next day.
So… my days feel extremely short as I only have 4 to 6 hours of mental clarity and energy. As for the rest of the day, I could as well be sleeping.
This also means that my time for getting anything done such as communicating with doctors and hospitals, fighting with retarded government agencies, writing, studying, reading, talking with family and friends and simply living is extremely limited. Actually, this whole post was written during short periods spanning about 7 days.
In the past, I’ve always healed myself using nutrition and food supplements – and while I’m still uncertain about all the underlying causes for my illness, I know for certain that I have high levels of inflammation. If I do anything that increase the level of inflammation, my symptoms worsen and new arises.
If I eat grains or dairy, I get flares of psoriasis, severe cold-like symptoms and I get bloated. If I eat too much carbohydrates in one sitting (more than 50 grams), I get sugar in my urine, blurred vision and I can almost fall asleep standing (signs of diabetes). And for protein, if I consume more than 20 grams of protein in a sitting, I get noticeable amounts of albumin in the urine – to such a degree that it turns white. So, my kidneys are probably struggling. I also feel somewhat better in ketosis or when fasting – two scenarios that is very anti-inflammatory.
However, I’ve lost a lot of muscle mass since my first operation, close to 14kg (31 lbs.), and my body fat is really low – so fasting to heal a little is not really an option as I actually need to gain weight. Also, to try to gain (or even maintain) weight on a ketogenic diet is tricky for me; because if I eat too much fat, I get the runs, which means loss of both calories and a lot of vital nutrients and electrolytes. And I can’t go especially high on the protein because of my kidneys. Actually, I have to settle with about 80 to 100 grams of protein a day. So, for the moment, I try to balance my diet as best as I can. And yes, it’s challenging.
Since I feel better in the morning and carbohydrates make me tired and drowsy, I consume as much fat and protein as my body can handle in the morning and mid-day. And since I’m pretty much a vegetable in the afternoon anyways, I start to consume my carbohydrates towards the evening to up the calories. So far, this is what works the best.
Hopefully, I will get to visit a team of specialists soon and perhaps find out the underlying causes – so I can make a plan for total recovery. I’m also waiting for an MRI, to find out how bad the second lump on my leg is and if I have more that is hidden and not visible to the eye.
I will keep you updated through this website and my Facebook. Perhaps my journey can help someone in a similar position.
Much love to all of you!