I’m sorry for the lack of updates. And to be honest, not that much have happened since my last post. While my health has progressively declined; the biggest news is that I’ve switched health care center and been assigned a new doctor. My previous doctor wrote a referral to specialists at a medical clinic, but he did not mention my symptoms, so the referral bounced back – wasting another three weeks of time. In other words, almost nothing has happened since I was put on sick-leave in October last year.
I visited my new doctor this past Monday and had some new blood work and tests done. I’m still waiting for the results, which will take a few days and up to 2 weeks. The only tests I could get a quick feedback on was for Lactate Dehydrogenase (LD) and Alkaline Phosphatase (ALP). LD was elevated a bit above the highest reference value and ALP was just above the highest reference.
LD is present in all cells of the body with its highest concentrations in heart, liver, muscle, kidney, lung, and erythrocytes. Elevations in LD is a sign of abnormal cellular breakdown in one or several of these areas and is usually linked to cancer and diseases involving the heart, liver, muscle, kidney, lung, and blood.
ALP is present in mainly our liver, bones, intestine, and placenta. Elevations in ALP is usually a sign of liver damage or disorders of the skeletal system that involve osteoblast hyperactivity and bone remodeling.
Looking at my medical history since late 2016 and my symptoms, these elevations comes as no surprises at all. It should also be noted, that these values have always been at the most lower end for me – so a rise to the upper end and above is huge.
|One week after MRI and the leakage of contrast agent. Nasty stuff!|
The MRI of the lump in my left leg has been forwarded to the orthopedic clinic in Västerås, where they will consult with experts in Stockholm. In other words, I’m still waiting for an opinion and surgery. And yeah, they punctured my vein with the contrast agent (see picture). I took four weeks for that nasty stuff to disappear(!)
As for my symptoms. My brain fatigue has slowly progressed to the worse, and on some days, I’m pretty much wasted as early as 10 AM in the forenoon. Same goes with my eyesight. It’s perfect in the mornings where I easily can make out things at long distances. But it rapidly declines trough the day by becoming blurred and I also get light-spots in my field of view. Combined with brain fog/fatigue and lack of energy, it makes it almost impossible to even play simple games or watch documentaries to pass the time. My afternoons and evenings are pretty much a living hell of boredom.
I’ve also noticed that whenever I have to do a lot of stuff (in the few early hours when I can), or when I meet with people and have to focus to find the right words and keep a conversation going, I get totally wiped out afterwards – sometimes to the degree that I’m still tired in the morning the day after. I especially noticed this after my last visit to my doctor. Even if I only where there for 45 minutes, it took a lot out of me.
So, if you write me on social media, by e-mail or on messenger and I don’t get back to you – don’t take it personal. I still have tons of people trying to contact me on a daily basis, but I only have energy to get back to a few of you – and some days I simply don’t have the energy to write or communicate at all – or sort through all the mail and messages. Same goes for calling me on my phone. Thank you for understanding this.
God bless you and your families!